Brain mets. Fuuuuuuuuuck.

I had an MRI last night.  Oncologist called me this morning.

They're small, and not causing edema or shifting of brain contents.  But, I have them.  They may be responsible for the transitory numbness I've had.

The next step is a radiation oncologist, probably next week.  I asked my oncologist how effective that would be.  He said it would shrink them, or make them stop growing, or make them go away.  There's no telling whether they'd come back.

I'll be more reflective later.  Had to get this out there.

UPDATE:  Here's the e-mail I sent out:

Brain mets. !#$+&^$$#+*%!!!

I had an MRI yesterday. I was told I wouldn't even get the results until Wednesday or so. My doctor called me this morning with the news. They're small, and not causing edema or shifting of brain contents. They may be responsible for some transitory numbness I've had (which was the reason he ordered the test). The next step is a radiation oncologist, probably next week. They'll call me to set that up.

I asked my oncologist how effective radiation would be. He said it would either shrink them, or make them stop growing, or make them go away. So there is hope in that. There's no telling whether they'll grow back.

Had a PET scan last Sunday; I've been suspecting worse lung involvement because I've had a cough for more than a month and my palpable tumors are growing. He didn't have that in front of him. Brain mets take precedence over everything else.

Trying to get in to UCD to be seen. My (Kaiser) doctor isn't opposed to that, but he said that brain mets rule me out of most experimental protocols.

Just got off the phone with Andee. This changes the game in one other dimension. If you are local, we may need you to drive me to radiation. I'll see if I can get anything closer than Rancho Cordova. I don't know how often this will be. If you can be called on for that, please say so.

Pray for wholeness; pray for strength; pray for access to effective treatment.

Kirstin