tag:blogger.com,1999:blog-14755785.post4146417690121657908..comments2023-10-31T04:15:34.653-07:00Comments on Barefoot and Laughing: Damn.Kirstinhttp://www.blogger.com/profile/07928583212781425068noreply@blogger.comBlogger31125tag:blogger.com,1999:blog-14755785.post-11049010840910479482011-06-13T00:35:27.054-07:002011-06-13T00:35:27.054-07:00You wrote:"Ipi has a low response rate, but t...You wrote:"Ipi has a low response rate, but there have been documented effects against brain mets. It also can be very harmful—but some say it’s easier than interferon, which I tolerated for a year with a headache and fatigue. It’s not what I want to do, but I’ll probably have to."<br /><br />I had metastatic melanoma (ankle to groin lymph nodes to a spine (T6) vertebra). For the vertebra the Oncologist gave me Radio therapy instantly, arranged for my local hospital to give Chemotherapy 2wice a week, and got me into a special Trial of "low dose, frequent injection, long duration" Roferon/Inteferon. <br />I injected myself (subcutaneously - in the muscle under the stomach skin) 3 times a week for three years. <br /><br />That began back in '93. Oncology staff reckoned I'd be dead seven years later. That would have been Y2K.<br />Hey look, love, it's 2011 and I'm still cancer-free at 60!<br /><br />Get your Oncologist to contact the Oncology Department of Palmerston North Public Hospital and inquire about the Trial's outcome. <br /><br />Wish I could offer something more practical. All I can give is this bit of knowledge and a prayer.Lynne M-Shttps://www.blogger.com/profile/12786188489313884471noreply@blogger.comtag:blogger.com,1999:blog-14755785.post-86503992960598108012011-05-25T18:42:11.558-07:002011-05-25T18:42:11.558-07:00Dear Kirstin,
Sending you our love and caring.
M...Dear Kirstin,<br /><br />Sending you our love and caring.<br /><br />Mary Beth & Mary LeeAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-14755785.post-67122167584913593872011-05-24T21:30:04.180-07:002011-05-24T21:30:04.180-07:00[I hope this won't be a platitude].
How much ...[I hope this won't be a platitude].<br /><br />How much time left?<br /><br />"One Day at a Time"<br /><br />It's all the time any of us ever REALLY have.<br /><br />Prayers ascending!!!<br /><br />{{{Kirstin}}}JCFnoreply@blogger.comtag:blogger.com,1999:blog-14755785.post-91051769934653929962011-05-24T18:18:16.525-07:002011-05-24T18:18:16.525-07:00Shit, shit, shit. Those are the prayers I send to...Shit, shit, shit. Those are the prayers I send to God for you. S/he better be prepared.susankayhttps://www.blogger.com/profile/15513759507628166408noreply@blogger.comtag:blogger.com,1999:blog-14755785.post-62615505526760874722011-05-24T13:04:26.761-07:002011-05-24T13:04:26.761-07:00with prayers and hugs from the east coast where we...with prayers and hugs from the east coast where we're hoping to try the new gm csf treatment...and pray it shows something to help other melanoma patients.<br /><br />chrissieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-14755785.post-7642891634533776632011-05-24T12:38:57.594-07:002011-05-24T12:38:57.594-07:00Another hug for you from up north. You got my pra...Another hug for you from up north. You got my prayers.Jennifer Garrison Brownellhttps://www.blogger.com/profile/10170014214291920971noreply@blogger.comtag:blogger.com,1999:blog-14755785.post-70110461846446069992011-05-24T12:10:22.856-07:002011-05-24T12:10:22.856-07:00Thinking about you with love and sending love.
sea...Thinking about you with love and sending love.<br />seanSean S.https://www.blogger.com/profile/07303881817728154139noreply@blogger.comtag:blogger.com,1999:blog-14755785.post-37538597304615602222011-05-24T10:58:08.012-07:002011-05-24T10:58:08.012-07:00Love (disappointed, it's still love) and grati...Love (disappointed, it's still love) and gratitude (immeasurable). Prayers always.Nancy Holmes Nybergnoreply@blogger.comtag:blogger.com,1999:blog-14755785.post-54462243616330493272011-05-24T09:56:45.222-07:002011-05-24T09:56:45.222-07:00So we continue to pray and hope, and look for God ...So we continue to pray and hope, and look for God in this (but not behind it). You are the bravest and most honest human I know. Thank you for the gift you are, and for your support and love as I tread my own rocky path. <br /><br />I will come out again if/when you want me to. Let's talk soon.<br /><br />(((((((KP)))))))katnoreply@blogger.comtag:blogger.com,1999:blog-14755785.post-16665340081174301192011-05-24T06:59:08.783-07:002011-05-24T06:59:08.783-07:00Oh K..I'm so sorry. ((((You)))) Damn it doesn&...Oh K..I'm so sorry. ((((You)))) Damn it doesn't quite cover it for me, but there it is. Always in my prayers.eileennoreply@blogger.comtag:blogger.com,1999:blog-14755785.post-34524395744051313862011-05-24T04:58:44.999-07:002011-05-24T04:58:44.999-07:00Damn it, indeed.
Still praying....Damn it, indeed.<br /><br />Still praying....Wormwood's Doxyhttps://www.blogger.com/profile/10882756844690851674noreply@blogger.comtag:blogger.com,1999:blog-14755785.post-5351945368644072882011-05-24T04:34:44.371-07:002011-05-24T04:34:44.371-07:00Love and prayers, so sorry.Love and prayers, so sorry.Anonymoushttps://www.blogger.com/profile/08235049965406944684noreply@blogger.comtag:blogger.com,1999:blog-14755785.post-12964609937901183442011-05-24T04:13:39.126-07:002011-05-24T04:13:39.126-07:00Damn indeed. Still praying...Damn indeed. Still praying...Rev Dr Momhttps://www.blogger.com/profile/14686528826414330355noreply@blogger.comtag:blogger.com,1999:blog-14755785.post-89394482531824207332011-05-24T03:58:02.661-07:002011-05-24T03:58:02.661-07:00Damn. I'm sorry this didn't work out. You ...Damn. I'm sorry this didn't work out. You are in my thoughts as always.SHC aka Gatornoreply@blogger.comtag:blogger.com,1999:blog-14755785.post-57933407391310809642011-05-24T03:25:21.654-07:002011-05-24T03:25:21.654-07:00Thanks for sharing so much of yourself and what yo...Thanks for sharing so much of yourself and what you are going through personally. Really appreciate the honesty!<br /><br />Love,<br />Amyamy dnoreply@blogger.comtag:blogger.com,1999:blog-14755785.post-35021364893683048852011-05-24T02:52:59.365-07:002011-05-24T02:52:59.365-07:00Damnit.
Love you.
God bless A.Damnit.<br /><br />Love you.<br />God bless A.it's margarethttps://www.blogger.com/profile/13577280471100732619noreply@blogger.comtag:blogger.com,1999:blog-14755785.post-71007444842171608722011-05-24T01:06:45.631-07:002011-05-24T01:06:45.631-07:00Padre Mickey, Barbi, Jane, Paul... me too.Padre Mickey, Barbi, Jane, Paul... me too.Lindyhttp://lindysadventureblog.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-14755785.post-48689198146485087952011-05-24T00:00:52.481-07:002011-05-24T00:00:52.481-07:00i'm so sorry that you're not the right mut...i'm so sorry that you're not the right mutation. i was really hoping that this would work out. i am happy that both you and A seem satisfied with your health care network. i know how much you two work to keep up to speed on all this. big hug. xoxraninoreply@blogger.comtag:blogger.com,1999:blog-14755785.post-90830230214499207682011-05-23T22:00:19.250-07:002011-05-23T22:00:19.250-07:00You are living - fully, abundantly, with your hear...You are living - fully, abundantly, with your heart open to love. It's just not the living we had planned for you.DeborahGhttps://www.blogger.com/profile/14909127945669012996noreply@blogger.comtag:blogger.com,1999:blog-14755785.post-89082596600790871412011-05-23T21:23:12.640-07:002011-05-23T21:23:12.640-07:00I have no words. Like Cheryl, I wish I could just ...I have no words. Like Cheryl, I wish I could just wave a magic wand and rid you of this. Know that I love you, I'm praying for you, and I'm hoping with all my heart that SOMETHING works.Carmelnoreply@blogger.comtag:blogger.com,1999:blog-14755785.post-1906679163893835202011-05-23T20:53:24.294-07:002011-05-23T20:53:24.294-07:00Hugs.... your grace is a lesson to us all.Hugs.... your grace is a lesson to us all.IThttps://www.blogger.com/profile/09605163506396013904noreply@blogger.comtag:blogger.com,1999:blog-14755785.post-29729286622721585512011-05-23T20:48:30.843-07:002011-05-23T20:48:30.843-07:00Prayers and love
Courage for each day
Shards of gr...Prayers and love<br />Courage for each day<br />Shards of grace as well<br />Holy moments holy presence<br />PatPatnoreply@blogger.comtag:blogger.com,1999:blog-14755785.post-57406372427541921612011-05-23T20:33:03.404-07:002011-05-23T20:33:03.404-07:00I just love you so much and wish that I had a magi...I just love you so much and wish that I had a magic wand to just fix all of this. :(Cheryl Beckettnoreply@blogger.comtag:blogger.com,1999:blog-14755785.post-83139392262369105672011-05-23T20:25:39.785-07:002011-05-23T20:25:39.785-07:00I am sending you light
To heal you, to hold you,
I...I am sending you light<br />To heal you, to hold you,<br />I am sending you light<br />To hold you in love.<br /><br />SusanAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-14755785.post-82050193309603035212011-05-23T20:20:05.863-07:002011-05-23T20:20:05.863-07:00Sending love and hugs. You are wonderful and I kn...Sending love and hugs. You are wonderful and I know this is hard (and this is the understatement of the century).Kay & Sarahhttps://www.blogger.com/profile/04244257765709660605noreply@blogger.com